Bold, Brave, and Breathless: Reveling in Childhood's Splendiferous Glories While Facing Disability and Loss (Paperback)
After a normal, healthy, full-term pregnancy, Margaret Moore's parents Anne and Terrence were shocked as a prolapsed umbilical cord left their daughter unable to breathe on her own. Margaret, nicknamed Meg, was not expected to live through the night and began to breathe on her own by the next day— a phenomenon that medical personnel deemed a miraculous recovery. Meg came home with a physical disability Cerebral Palsy and permanent dependence on others for help with feeding, dressing, hygiene, and transfers to and from her wheelchair and walker. A speech impediment caused her to rely on a communication device to speak to others.
Meg's disability only added to the already chaotic Moore household. Along with having Meg's two older brothers, Sean and Brian, age three and four at the time of Meg's birth, Terrence had already been diagnosed with a rare form of stomach cancer, which later took his life just before Meg's second birthday. Raising the kids on her own, Anne was determined to teach Meg, Brian, and Sean to persevere through even the toughest of circumstances to reach their ambitions. This book follows Meg from the time of her birth through her Long Meadow Elementary School graduation. Through granular levels of detail, Meg narrates her experiences of pursuing regular education and activities such as Girl Scouts, soccer, ice-skating, and snow tubing despite her physical limitations. She delves into the challenges that often comes with seeking inclusion and acceptance, but she also highlights the joyous— and often hilarious— adventures of her childhood. The story of Meg Moore and her family is meant to make you ponder how you, too, can reach your wildest ambitions and how your inner strength is one of the greatest factors enabling you to do so.
Margaret Anne Mary Moore is a summer 2022 graduate of Fairfield University';s Master of Fine Arts in Creative Writing Program, where she earned a degree in creative nonfiction and poetry. A 2020 magna cum laude graduate, she holds a Bachelor's degree in English/Creative Writing from Fairfield University. Margaret is an editor and the marketing coordinator at Woodhall Press and also works as an ambassador for PRC-Saltillo. She has been featured on NBC Connecticut and WFSB News and delivers presentations at national and international writing conferences. Her writing has appeared or is forthcoming in America Magazine, Brevity's Nonfiction Blog, Kairos: A Journal of Rhetoric, Technology, Pedagogy, and Independent Catholic News among other publications. Margaret lives in Middlebury, Connecticut.
"With beauty, clarity, and a keen eye for character and reflection, Moore draws readers into a complex story, told with humor and honesty, that explores the lived experience of disability, accessibility, barriers, and agency." —Sonya Huber, author of Pain Woman Takes Your Keys and Other Essays from a Nervous System, Cover Me: A Health Insurance Memoir, Opa Nobody, and other books
"Meg recounts a story of grit, strength, and… steadfast advocacy that directly confronts preconceptions of differently abled persons... Everyone, regardless of ability, needs to experience this young woman’s (and the entire disability community’s) demand not to be coddled, but affirmed.” —Craig A. Kazin, Member, Board of Governors, Shriners Children's New England, part of the Shriners Hospitals for Children system
"Moore’s vision of herself isn’t one of submitting to limitation and constraint but rather of accepting life as it is and capturing the great joie de vivre that can be savored from each moment." —Michael C. White, author of Resting Places and winner of the Tuscany Prize for Best Novel.